What is Smith-Magenis Syndrome? We are here to help educate and provide support through our own SMS journey. Find resources,contact other parents. View Details
http://www.freewebs.com/taylorsmsComments (0)Reviews (0)
A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
http://www.cherubs-cdh.org
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
http://www.cafamily.org.uk
For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
http://members.cox.net/fdsupport/index.html
Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.
http://www.gorhams.dk
Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphab...
http://www.rarediseases.org/
Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by ...
http://pweb.netcom.com/~jkbarton/nomid/Html/nomid_home_page.htm
Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient suppo...
http://rarediseases.info.nih.gov/
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